well, physiotherapy is f*cking brutal, the pain seems to be worse after my physio because they have to stretch and pull on my neck and only after 3 days, i am ready to pack it in. right now, i am going 2 days a week and yes i get a break between sessions, i am finding that my head and neck flare up really bad and the pain is so excruciating that i get sick to my stomach and have to go lie down. i am still taking my medications like i am supposed to but, they are not giving me any pain relief and it is still hard to sleep at night so i am still tired and cranky and not fit to be around.
i am still managing to go for a walk twice a week and it is helping me to keep in shape because my running days are over for good and although i miss it, i am not putting myself or my head at risk as i am in enough pain now due to my occipital neuralgia. my physiotherapist told me that in addition to my occipital neuralgia, the nerve is compressed which makes the pain even more excruciating and that will make the physiotherapy even more painful to endure and that i have a very long and painful road ahead of me.
that's it for now, blog tomorrow.
Monday, August 15, 2011
Saturday, August 13, 2011
saturday august 13
well, i have had a very stressful week, starting with very painful physiotherapy that began on tuesday, august 9th. my physiotherapist's name is erin and she is really nice. the session began with some very painful traction massage which in theory is supposed to stretch out the neck to help with the pain from my occipital neuralgia. after enduring the brutal one hour session, i was still in a lot of pain and was told by my physiotherapist that i would have to endure another painful session on august 11th which was only 2 days away. she also said that from now on, i will be seeing her on mondays and wednesdays for god knows how long and if i found it too painful, that we would have to cut it back to 1 day a week. so as it stands right now, i found my first 2 sessions very painful and emotionally and physically draining but at least i have a 4 day break until i have to endure it all over again. and like erin told me on thursday, i have a very long and painful road ahead of me but, the reality is that patients who have occipital neuralgia won't ever be completely pain free and sometimes physiotherapy doesn't really help and they have to stop it all together. i have decided to give it a fair try, but if i find that the 2 days a week are to rough and painful, i will stop it for good.
i am not happy to report that the new medication is still not working and it is not helping with my pain. i have been taking it for 2 weeks now along with the tegretol and so far, nothing. my doctor said that it could take months for the medications to work and even then i still won't be completely pain free. my best friend has been my rock since i got the right diagnosis back in july because she has been living with this for a long time. she is there for me and it is great to know that i am not alone because i have someone who knows just how severe the pain can be and knows what i am going through. my husband has stepped up to the plate to help me with the housework. i am still able to wash the dishes and do laundry, but i find it hard to vaccum because it is too loud and hurts my head. god love him because he went out and bought me a new vaccum that isn't too loud and doesn't hurt my head. how many husbands would do that for their wives????
i am so lucky to have him and i wouldn't know what to do if i he wasn't there for me. he is always saying that if he could take my pain away or trade places with me, he would do it in a heart beat because he loves me very much and he wouldn't be able to cope if something happened to me. i told him that i felt the same way because if i lost him, i wouldn't be able to cope and i wouldn't be able to live my life without him. over the last few weeks, our marriage has gotten stronger and yes all couples have their ups and downs, they argue and disagree with each other and yes we have our problems, but at the end of the day, we are still husband and wife and right now, i wouldn't trade it or change it for anything. we have been together for 18 years and married for13 years and have 2 great daughters and right now i am so proud of my family and i look forward to many many more years together.
that's it for now, will blog soon.
i am not happy to report that the new medication is still not working and it is not helping with my pain. i have been taking it for 2 weeks now along with the tegretol and so far, nothing. my doctor said that it could take months for the medications to work and even then i still won't be completely pain free. my best friend has been my rock since i got the right diagnosis back in july because she has been living with this for a long time. she is there for me and it is great to know that i am not alone because i have someone who knows just how severe the pain can be and knows what i am going through. my husband has stepped up to the plate to help me with the housework. i am still able to wash the dishes and do laundry, but i find it hard to vaccum because it is too loud and hurts my head. god love him because he went out and bought me a new vaccum that isn't too loud and doesn't hurt my head. how many husbands would do that for their wives????
i am so lucky to have him and i wouldn't know what to do if i he wasn't there for me. he is always saying that if he could take my pain away or trade places with me, he would do it in a heart beat because he loves me very much and he wouldn't be able to cope if something happened to me. i told him that i felt the same way because if i lost him, i wouldn't be able to cope and i wouldn't be able to live my life without him. over the last few weeks, our marriage has gotten stronger and yes all couples have their ups and downs, they argue and disagree with each other and yes we have our problems, but at the end of the day, we are still husband and wife and right now, i wouldn't trade it or change it for anything. we have been together for 18 years and married for13 years and have 2 great daughters and right now i am so proud of my family and i look forward to many many more years together.
that's it for now, will blog soon.
Sunday, August 7, 2011
august 7 quick update
just a quick note to let you know that i had another rough nite because my pain was really bad and it kept me waking me up so needless to say, i am tired and cranky today. i have been taking the new medication for 4 days now and i am still not finding any difference and i am still in a lot of pain. i spent most of the day at home watching movies and eating popcorn with my girls and it was a lot of fun. we are here at my mom's house for supper so i decided to check my e-mail and quickly update my blog.
i just wanted to add that i start physiotherapy on tuesday at the hospital. i am not really sure what the physiotherapist will do, but i think that it will involve some kind of exercise and massage to my head and neck so it will definitely be interesting to see what transpires on tuesday. i will keep you all posted and i will blog in a couple of days. chat later.
kim.
i just wanted to add that i start physiotherapy on tuesday at the hospital. i am not really sure what the physiotherapist will do, but i think that it will involve some kind of exercise and massage to my head and neck so it will definitely be interesting to see what transpires on tuesday. i will keep you all posted and i will blog in a couple of days. chat later.
kim.
Saturday, August 6, 2011
saturday, august 6 just a short update
hi readers,
this will just be a short blog today as i am just not feeling very well today. i had a rough night because my pain was really bad and it was hard for me to get to sleep, so needless to say, i didn't sleep very well. i have now been on my new medication for 3 days now and so far i haven't found any difference because my pain is still really bad and i feel like i have been hit by a mack truck. i took it easy today and spend time at home with the girls and watched 'pirates of the caribbean' for the 20th time. i really didn't mind because i am a really big fan of johnny depp and i love his character" captain jack sparrow"!!! i definitely wouldn't kick him out of bed for eating crackers!!!! lol!!!!!!!!!!!!!!!!!!!!
the girls and i are here at my mom's house for supper so i decided to check my e-mail and update my blog. i really hope the weather starts to improve because where the hell did summer go??? gross, isn't it!!!! it never fails, after the regatta is over, so is summer!!! knowing our luck, we will get the summer weather when the kids go back to school, am i right??? anyway folks, that's about it for now and keep praying for me. will blog tomorrow.
cheers.
this will just be a short blog today as i am just not feeling very well today. i had a rough night because my pain was really bad and it was hard for me to get to sleep, so needless to say, i didn't sleep very well. i have now been on my new medication for 3 days now and so far i haven't found any difference because my pain is still really bad and i feel like i have been hit by a mack truck. i took it easy today and spend time at home with the girls and watched 'pirates of the caribbean' for the 20th time. i really didn't mind because i am a really big fan of johnny depp and i love his character" captain jack sparrow"!!! i definitely wouldn't kick him out of bed for eating crackers!!!! lol!!!!!!!!!!!!!!!!!!!!
the girls and i are here at my mom's house for supper so i decided to check my e-mail and update my blog. i really hope the weather starts to improve because where the hell did summer go??? gross, isn't it!!!! it never fails, after the regatta is over, so is summer!!! knowing our luck, we will get the summer weather when the kids go back to school, am i right??? anyway folks, that's about it for now and keep praying for me. will blog tomorrow.
cheers.
Friday, August 5, 2011
friday august 5
hi readers,
i saw my doctor yesterday because the pain from my occipital neurolgia is getting worse and the medication that i am taking, the tegretol, still isn't helping my pain. she told me that we could try another pain medication called naproxen to see if it would make any difference with the severe occipital neurolgia pain. she said that where my pain is really severe, she would start me off at 500mgs twice a day, which is the recommended dose and to follow up with her in a couple of weeks just to see how i am doing on this new medication. she also told me to continue to take the tegretol because it could take months before we know if it will work for me. over the last 2 weeks, i have been dealing with another painful symptom of occipital neurolgia, neck pain. there have been times when my neck hurts and i can't turn my head and one of my best friends who has been living with this neurological disorder told me that the neck pain goes with this too. she has really been a godsend for me because i can call her anytime just to talk and if i have any questions, she can answer them for me, and so she has become a great support system for me.
anyways, that's about it for now and i will keep you all updated on how i am doing and please keep praying for me. ttyl
kim.
i saw my doctor yesterday because the pain from my occipital neurolgia is getting worse and the medication that i am taking, the tegretol, still isn't helping my pain. she told me that we could try another pain medication called naproxen to see if it would make any difference with the severe occipital neurolgia pain. she said that where my pain is really severe, she would start me off at 500mgs twice a day, which is the recommended dose and to follow up with her in a couple of weeks just to see how i am doing on this new medication. she also told me to continue to take the tegretol because it could take months before we know if it will work for me. over the last 2 weeks, i have been dealing with another painful symptom of occipital neurolgia, neck pain. there have been times when my neck hurts and i can't turn my head and one of my best friends who has been living with this neurological disorder told me that the neck pain goes with this too. she has really been a godsend for me because i can call her anytime just to talk and if i have any questions, she can answer them for me, and so she has become a great support system for me.
anyways, that's about it for now and i will keep you all updated on how i am doing and please keep praying for me. ttyl
kim.
Wednesday, August 3, 2011
regatta day
hi reader's
my hubby and i took the girls to the regatta this morning and despite the drizzle, we had a blast. we arrived at the pond around 9:30 and by the time we walked down to the games of chance it was 9:45. the first goods wheel that we tried was the torbay volunteer fire department and that was the wheel where we had the most luck because we all went home with 3 stuffed animals each. after that, tori had some ice cream and watched the boat races and the people walking by. we also ran into a few people that we knew and stopped to have a chat. then we went for a walk and tried our luck at a few other games of chance, but we didn't have any luck so we decided to sit on the grass and watch the boat races until it was time for lunch. and you can't go to the regatta and not have a plate of french fries, am i right???? you know what i'm talking about!!!!
we left to go home around 1:30 because we were all tired and because my head was in a lot of pain from the occipital neurolgia. and because i didn't sleep very well last night. i plan to go to bed early tonight so i can get rest my poor aching head. the medication is still not helping and i am still trying to get an appointment to see my doctor as soon as possible to see if my medication needs to be adjusted or if i need to be put on something else to try to help this severe pain in my head. keep your fingers crossed and pray that i get an appointment soon.
and on a final note, i want to send a get well wish to a very special fat cat named Danny who is sick and not feeling very well today. i love you tons and tons, Danny and i hope that you feel better soon, so get lots of rest and please know that all your friends, tori, tara, sour puss, and myself, along with your furry friends, garfield, oreo, hammy and charlie love you a lot too and send their love for a fast and speedy recovery.
chat tomorrow,
kim.
my hubby and i took the girls to the regatta this morning and despite the drizzle, we had a blast. we arrived at the pond around 9:30 and by the time we walked down to the games of chance it was 9:45. the first goods wheel that we tried was the torbay volunteer fire department and that was the wheel where we had the most luck because we all went home with 3 stuffed animals each. after that, tori had some ice cream and watched the boat races and the people walking by. we also ran into a few people that we knew and stopped to have a chat. then we went for a walk and tried our luck at a few other games of chance, but we didn't have any luck so we decided to sit on the grass and watch the boat races until it was time for lunch. and you can't go to the regatta and not have a plate of french fries, am i right???? you know what i'm talking about!!!!
we left to go home around 1:30 because we were all tired and because my head was in a lot of pain from the occipital neurolgia. and because i didn't sleep very well last night. i plan to go to bed early tonight so i can get rest my poor aching head. the medication is still not helping and i am still trying to get an appointment to see my doctor as soon as possible to see if my medication needs to be adjusted or if i need to be put on something else to try to help this severe pain in my head. keep your fingers crossed and pray that i get an appointment soon.
and on a final note, i want to send a get well wish to a very special fat cat named Danny who is sick and not feeling very well today. i love you tons and tons, Danny and i hope that you feel better soon, so get lots of rest and please know that all your friends, tori, tara, sour puss, and myself, along with your furry friends, garfield, oreo, hammy and charlie love you a lot too and send their love for a fast and speedy recovery.
chat tomorrow,
kim.
Monday, August 1, 2011
august 1
hi readers,
it is hard to believe that it is the first of august already!!!! and only 2 more days until the regatta!!! yikes where has the summer gone!!! yesterday, my hubby and i took the girls to salmonier nature park to see the animals and we had a great time. the weather was decent for the drive out, we arrived safely and we didn't see any moose!!!! the walkway to the animals was really beautiful, we saw a snowy owl, a brown horn owl, a newfoundland martin, canada geese, a fox who was having a nap and an arctic fox who was also having a snooze. all the animals were so beautiful and the entire trail that we walked took about an hour which was 2.5k and it was a really nice walk. after we finished the trail, we headed to the picnic table to have our nice picnic lunch, and then a bathroom break before we headed home. just when we were getting into the car, the sky opened up and poured buckets and we were lucky that we saw the animals when we did because the people that were arriving just as we were leaving ran back to their cars because of the pouring rain. i really enjoyed myself because that was my first time there and we are planning to take the girls back there again before they go back to school.
i am still trying to get a hold of my pain doctor with no success. i am still in a lot of pain and the medication is just not helping. i am still not sleeping well because of the pain so i try to to take a nap during the day. i will keep you posted and i will blog tomorrow.
kim.
it is hard to believe that it is the first of august already!!!! and only 2 more days until the regatta!!! yikes where has the summer gone!!! yesterday, my hubby and i took the girls to salmonier nature park to see the animals and we had a great time. the weather was decent for the drive out, we arrived safely and we didn't see any moose!!!! the walkway to the animals was really beautiful, we saw a snowy owl, a brown horn owl, a newfoundland martin, canada geese, a fox who was having a nap and an arctic fox who was also having a snooze. all the animals were so beautiful and the entire trail that we walked took about an hour which was 2.5k and it was a really nice walk. after we finished the trail, we headed to the picnic table to have our nice picnic lunch, and then a bathroom break before we headed home. just when we were getting into the car, the sky opened up and poured buckets and we were lucky that we saw the animals when we did because the people that were arriving just as we were leaving ran back to their cars because of the pouring rain. i really enjoyed myself because that was my first time there and we are planning to take the girls back there again before they go back to school.
i am still trying to get a hold of my pain doctor with no success. i am still in a lot of pain and the medication is just not helping. i am still not sleeping well because of the pain so i try to to take a nap during the day. i will keep you posted and i will blog tomorrow.
kim.
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