well, i have had a very stressful week, starting with very painful physiotherapy that began on tuesday, august 9th. my physiotherapist's name is erin and she is really nice. the session began with some very painful traction massage which in theory is supposed to stretch out the neck to help with the pain from my occipital neuralgia. after enduring the brutal one hour session, i was still in a lot of pain and was told by my physiotherapist that i would have to endure another painful session on august 11th which was only 2 days away. she also said that from now on, i will be seeing her on mondays and wednesdays for god knows how long and if i found it too painful, that we would have to cut it back to 1 day a week. so as it stands right now, i found my first 2 sessions very painful and emotionally and physically draining but at least i have a 4 day break until i have to endure it all over again. and like erin told me on thursday, i have a very long and painful road ahead of me but, the reality is that patients who have occipital neuralgia won't ever be completely pain free and sometimes physiotherapy doesn't really help and they have to stop it all together. i have decided to give it a fair try, but if i find that the 2 days a week are to rough and painful, i will stop it for good.
i am not happy to report that the new medication is still not working and it is not helping with my pain. i have been taking it for 2 weeks now along with the tegretol and so far, nothing. my doctor said that it could take months for the medications to work and even then i still won't be completely pain free. my best friend has been my rock since i got the right diagnosis back in july because she has been living with this for a long time. she is there for me and it is great to know that i am not alone because i have someone who knows just how severe the pain can be and knows what i am going through. my husband has stepped up to the plate to help me with the housework. i am still able to wash the dishes and do laundry, but i find it hard to vaccum because it is too loud and hurts my head. god love him because he went out and bought me a new vaccum that isn't too loud and doesn't hurt my head. how many husbands would do that for their wives????
i am so lucky to have him and i wouldn't know what to do if i he wasn't there for me. he is always saying that if he could take my pain away or trade places with me, he would do it in a heart beat because he loves me very much and he wouldn't be able to cope if something happened to me. i told him that i felt the same way because if i lost him, i wouldn't be able to cope and i wouldn't be able to live my life without him. over the last few weeks, our marriage has gotten stronger and yes all couples have their ups and downs, they argue and disagree with each other and yes we have our problems, but at the end of the day, we are still husband and wife and right now, i wouldn't trade it or change it for anything. we have been together for 18 years and married for13 years and have 2 great daughters and right now i am so proud of my family and i look forward to many many more years together.
that's it for now, will blog soon.
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